Morning Tea for Rare Disease Day

Date & time

10.30–11.30am 28 February 2014

Location

The Foyer, The John Curtin School of Medical Research, Building 131, Garran Road, ANU

Contacts

 Robyn O'Keefe
 +61 2 612 51329

Staff of The Australian Phenomics Facility held a morning tea on Friday 28 February in the JCSMR foyer in recognition of Rare Disease Day. Gold coin donations will support Rare Voices Australia (RVA) in their efforts to raise awareness and funds for patients living with rare diseases.

RVA will also be holding  a Parliamentary Event on 6th March at Parliament House Canberra and launching their publication - The Australian Experience of Living with a Rare Disease. For  more information: http://www.rarevoices.org.au/

 

Updated:  18 October 2017/Responsible Officer:  Director, JCSMR/Page Contact:  Web Manager